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The VT CFIDS Assoc, Inc.
Congressman
Bernard Sanders
1 Church St. 2nd Floor,
Burlington, VT 05401
Phone - 802-862-0697
In-State 800-339-9834
Fax - 802-860-6370
167 Main Street, Suite 410
Brattleboro, VT 05301
Phone - 802-254-8732
Fax - 802-254-9207
2233 Rayburn H.O.B.,
Washington DC 20515
Phone - 202-225-4115
Fax - 202-225-6790
Contact
Congessman Sanders
Senator
Jim Jeffords
30 Main Street
Suite 350
Burlington, VT 05401
(802) 658-6001
(800) 835-5500 (Only in Vermont)
453 Stone Cutters
Way
Suite 1
Montpelier, VT 05602
(802) 223-5273
(800) 835-5500 (Only in Vermont)
Lindholm Office
Building
2 South Main Street
Rutland, VT 05701
(802) 773-3875
(800) 835-5500 (Only in Vermont)
413 Dirksen Senate
Office Building
Washington, D.C. 20510
(202) 224-5141
Contact
Senator Jeffords
Senator
Patrick Leahy
199 Main Street,
4th Floor
Burlington, VT 05401
(802) 863-2525
1-800-642-3193
P.O. Box 933
87 State Street, Room 338
Montpelier, VT 05602
(802) 229-0569
433 Russell Senate
Office Bldg
(at Constitution and Delaware)
United States Senate
Washington, DC 20510
(202) 224-4242
Contact
Senator Leahy
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December
11, 2005
The
most powerful political document is the hand written letter from a constituent
to a representative.
I
have received the following from Kenneth Friedman PhD., and it details
a more difficult turn of events in regards to the CFSAC and the NIH.
Please
write our Federal Delegation.
A sample letter is below, their addresses on the left. Thank
you.
Hi
Rik!
Per this morning's telephone conversation, I have a received a letter
of
Dr. Howard Zucker, Executive Secretary of the U.S. Department of Health
and Human Services Chronic Fatigue Syndrome Advisory Committee. The
letter conveys his resignation from Health and Human Services for work
with the World Health Organization.
His resignation, in my opinion, could not possibly come at a worse time.
Half of the members of the CFSAC were rotated off of the Committee in
September. Those of us who remain on the Committee for one more year
have not been informed as to who will be the new members. To my knowledge,
a new Chairman of the Committee has not been appointed. With no Chairman,
and no Executive Secretary (who represents the Department of Health
and Human Services on the Committee and serves to guide the Committee
through the maize of Federal offices and regulations), I fear the Committee
is in disarray and will not meet at its scheduled time in January, 2006.
The CFSAC formulated (11) recommendations at the end of its first year
of operation. At the end of its second year of operation, those
recommendations had not been acted upon. Many federal Congressman sent
a letter to the U.S. Secretary of Health urging action be taken on those
recommendations. There has been no response.
All patients with CFS and related illnesses should be concerned by these
events. The CFSAC spoke and speaks at the federal level with one lucid
voice for research, education and patient care of CFS patients. Such
an opportunity may never occur again.
Can we save the momentum generated by the CFSAC?
We have a short window of opportunity to do so. Federal Congressman
and Senators will soon be on holiday and returning to their districts
and
states. We must aprize them of this unfortunate situation and ask them
to assist us in continuing the work of the CFSAC and obtaining responses
from the U.S. Secretary of Health to the priority issues established
by the CFSAC now more than one year ago.
I look forward with working with you and all interested parties.
Sincerely,
Kenneth J. Friedman, Ph.D.
Research Associate, Green Mountain College
Associate Professor of Pharmacology and Physiology, N.J. Medical School
Member, Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Member, Education Subcommittee of the CFSAC
Member, Research Subcommitte of the CFSAC
The
Honorable,...
Dear,.....
I
live in Vermont and my life and the lives of my family and friends is
deeply affected by Chronic Fatigue Syndrome.
I am deeply concerned about the status of the eleven recommendations
made to The National Institutes of Health by the U.S. Department of
Health & Human Services Chronic Fatigue Syndrome Advisory Committee.
Please, on my behalf, encourage the NIH to act immediately on their
recommendations and advise me of your results. Thank you.
Sincerely,...
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